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Molecules to Medicine: The Science of Porphyria

Join porphyria expert John Phillips, PhD and fellow patient Lina Rebeiz for a deep dive into the science of porphyria. We’ll be exploring topics like:

  • Why different types of porphyria have such different symptoms

  • What happens to samples when they are exposed to light

  • How the new treatments for porphyria work

Register below to get your questions answered!

Details:

  • Date: Saturday, June 21, 2025

  • Time: Noon to 1:00 PM ET (find your local time here)

  • Location: Zoom, register below for the link!

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6 de junio

Navigating Porphyria Treatment Costs: How HealthWell Can Help

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Siguiente
9 de octubre

International Porphyrias Symposium 2025